There is a clear role for the users of services in the development of appropriate information and statistics. The UK Statistics Authority’s Code of Practice for Official Statistics outlines a protocol on user engagement the basis of which, including the need to understand the requirements and views of the users of information, are applicable to the development of all information.
The Health and Social Care Information Centre works with a range of relevant stakeholders and experts in the design and presentation of its statistics. It recognises that it needs to do more in this regard, and will be reviewing its publications strategy accordingly.
While the initial development of specialty level statistics as outlined in recommendation 264 had limited input from patient groups, NHS England will consider carefully the role of service users in taking this programme of work forward.
See update to recommendation 264.
In addition, NHS England is launching a programme of composite indicator development which will provide an ‘at a glance’ view of how well hospital services are performing. This will roll out over 10 clinical areas throughout 2014-2016. The development of the markers will be commissioned from those organisations that have the skills, experience and data to do the work effectively – most likely this will be drawn from existing clinical audits and intelligence networks. In developing the new markers, a central requirement is that proper regard is given to the priorities of patients. Additionally the individual indicators that make up each composite will be made available so that patients, clinicians and managers can better understand the variations that exist within and between services.